|ASIS&T 2006||START Conference Manager|
This poster presents preliminary results of a study that uses the CDA standard as a translating mechanism to facilitate identification of PHI in electronic health records. The researchers have developed a HIPAA-aware EAD finding aid for use with electronic health record collections. This finding aid will provide information to future users of such collections about what HIPAA-regulated data elements are present and where in the document they reside. This work can further archivists’ understanding of (1) the location and frequency of potentially HIPAA-sensitive data in historic documents, and (2) potentially sensitive types of historical medical records. The HIPAA-aware EAD finding aid is also being tested and refined for goodness of fit with representative documents of different types found in the historical collections at the Alan Mason Chesney Historical Archives, Johns Hopkins Medical Institutions. The collections include those of William S. Halsted, the father of American surgical education; pioneer psychobiologist Adolf Meyer; and the important urologist Hugh Hampton Young.
The ultimate product of this research project will be a twin set of finding aid templates, EAD-compliant and HIPAA-aware, for use with clinical documents both digital and paper-based, contemporary and historical. Beyond tool development, however, both archives and medical informatics stand to profit from increased understanding of our clinical documents. Health information is a more highly regulated commodity than ever and health information policy must be integrated into health information practice. An understanding of how much EHR content is and is not accessible to future researchers in a HIPAA climate will enable researchers and archivists alike to explore the riches of the clinical data in contemporary and historical records, while continuing to safeguard the privacy of the public. Comparison of the similarities and differences in clinical content between electronic health records and their print precursors will inform our understanding of both these media.
|START Conference Manager (V2.52.6)|